(Trivia) Answers for Audrey
Incarnate Word Academy
2788 Normandy Avenue
St. Louis, MO 63121
Saturday October 21, 2023
Doors Open at 6:30pm & Trivia Begins at 7pm
Have you ever heard of Prader Willi Syndrome? No? That was our same answer until our daughter, Audrey Rose, was born on December 12, 2021. After 18 days in the NICU we finally had our answer for why our daughter was not doing typical newborn things like moving her limbs, opening her eyes, eating, crying, or responding to touch. Auddie Rose was diagnosed with Prader Willi Syndrome (PWS).
Prader Willi Syndrome is a genetic disorder that affects a critical region of chromosome 15. PWS affects 1 in 15,000 births. With the spectrum syndrome there is risk of abnormal growth and body composition, insatiable hunger, and intellectual disability. The symptoms of PWS are likely due to dysfunction of a portion of the brain called the hypothalamus. Thus far Audrey has dealt with a variety of symptoms from PWS including a G-Button (feeding tube), milestone delays, AFOs (foot/ankle braces), Aspiration Risk, Adenoidectomy, Laryngomalacia Correction Surgery, Tube Placement, Weekly Physical Therapy, Occupational Therapy, and Speech Therapy, and Growth Hormone Treatment. All this to say, with these symptoms and interventions, Audrey has come so far and is excelling more than we could imagine.
However, we do not know how and to what extent future PWS symptoms will affect Audrey but we do know we want to continue to help fund research that will provide life changing treatments for PWS, which is why we are hosting our 3rd annual Trivia Night! We were blown away by the love and support of 2022’s Trivia Night and cannot wait for October 21st!
Last year we were able to raise just over $20,000 and our goal this year is repeat that and raise $20,000! We appreciate you contributing to that goal by attending Trivia Night. The proceeds raised on October 21st, 2023 will be donated to both the Spring family and PWSA | USA, a foundation that helped us in our darkest days and who is on the cutting edge of research, medical trials & life changing treatments. PWSA | USA provides support in three specific ways; (1) family & medical support, (2) research, and (3) public policy & advocacy. We have seen all three of these facets in the 18 months we have been a part of the PWS community and feel unbelievably supported as we navigate our new way of life.
We cannot thank you enough for your support! Please contact us with any questions you may have. We cannot wait to celebrate how far Audrey has come with those who love and support her each step of her journey!
NOTE: Event food is BYO Food and Drink to enjoy and share with your table!
Please note, once a table is purchased there will be no refunds given due to the nature of the event.