(Trivia) Answers for Audrey
Incarnate Word Academy
2788 Normandy Avenue
St. Louis, MO 63121
Saturday October 8, 2022
Have you ever heard of Prader Willi Syndrome? No? That was our same answer until our daughter, Audrey Rose, was born on December 12, 2021. After 18 days in the NICU we finally had our answer for why our daughter was not doing typical newborn things like moving her limbs, opening her eyes, eating, crying, or responding to touch. Auddie Rose was diagnosed with Prader Willi Syndrome (PWS).
Prader Willi Syndrome is a genetic disorder that affects a critical region of chromosome 15. PWS affects 1 in 15,000 births. With the spectrum syndrome there is risk of abnormal growth and body composition, insatiable hunger, and intellectual disability. The symptoms of PWS are likely due to dysfunction of a portion of the brain called the hypothalamus. We do not know how and to what extent PWS symptoms will affect Auddie but we do know we want to help fund research that will provide life changing treatments for PWS, which is why we are hosting our 2nd annual Trivia Night! We were blown away by the love and support of 2021’s Trivia Night and cannot wait for October 8th!
Last year we were able to raise just over $16,000 and our goal this year is $20,000! We appreciate you contributing to that goal by attending Trivia Night. The proceeds raised on October 8th, 2022 will be donated to PWSA | USA, a foundation that helped us in our darkest days and who is on the cutting edge of research, medical trials & life changing treatments. PWSA | USA provides support in three specific ways; (1) family & medical support, (2) research, and (3) public policy & advocacy. We have seen all three of these facets in the 18 months we have been a part of the PWS community and feel unbelievably supported as we navigate our new way of life.
We cannot thank you enough for your support! Please contact us with any questions you may have. We cannot wait to celebrate how far Audrey has come with those who love and support her each step of her journey!
Please note, once a table is purchased there will be no refunds given due to the nature of the event.