2022 was a landmark year for PWSA | USA and the work we provided our community. From our Volunteer Summit to our first ever DC Fly-in, PWSA continues to work tirelessly to represent our loved ones with PWS and have our voices heard. As we work together building bright futures for PWS families, we are inspired by our loved ones with PWS, and motivated to take action to ensure that all members of our PWS community have the benefit of passionate advocacy, exceptional family support, and life-changing research. Rare disease effects an estimated 30 million Americans and here at PWSA | USA we continue to work to meet the needs of our PWS rare disease community. 

Now, more than ever, we are propelled forward to take action from our homes, communities, and Chapters, all across the country in fun and extraordinary ways. That's why PWSA | USA is introducing it's Walk A Mile in Their Genes campaign to raise awareness for PWS and celebrate Rare Disease Day 2023! Where so much of our PWS journey is beyond our control, but we can continue to make our voices and our stories heard through advocacy and community outreach.