Ashley's 30th Birthday Fundraiser
Welcome to my birthday fundraising page! I am fundraising on behalf of Prader-Willi Syndrome Association!
I am raising money for my 30th birthday towards PWS!
PWSA | USA has been so helpful to our family since first finding the group! Kristi (PWSA's Parent Mentor) reached out almost immediately as soon as we joined the private facebook support group to introduce herself and get to know our family.
Kristi, as well as others in the group, have always been available to answer questions when in a pinch especially when as a parent to a toddler I never would have questioned certain things but having a child with PWS makes you overthink everything.
The website has been so helpful in explaining Harper's diagnosis and even helping to educate those that I work with who are unfamiliar with the diagnosis.
The facebook group has lead us to so many families who are all in this journey together! I have met a couple of mamas and their kiddos in person and been able to allow my Stella to interact with kiddos that have the same diagnosis. Stella doesnt see anything wrong with Harper but one day we will have to explain how her sister can't always have the same things she does or may not be able to do the same things as fast as she can and I love that we have other families to interact with for that reason. We have loved meeting new families and making new friends. It makes this hard journey doable because you can see how far others have come, while also having families on the same road you are on currently.
PWSA | USA has been a life saver since Harpers diagnosis and I cant imagine the last 6 months without our PWSA | USA family!
PWSA | USA educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome.
Please donate for my 30th birthday today so that we can work towards a better future for Harper and her friends diagnosed with PWS!
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