Walk a mile for Lyra's rare genes
As we work together building bright futures for PWS families, we are inspired by our loved ones with PWS, and motivated to take action to ensure that all members of our PWS community have the benefit of passionate advocacy, exceptional family support, and life-changing research. Rare disease effects an estimated 30 million Americans and here at PWSA | USA we continue to work to meet the needs of our PWS rare disease community.
Now, more than ever, we are propelled forward to take action from our homes, communities, and Chapters, all across the country in fun and extraordinary ways. That's why PWSA | USA is introducing it's Walk A Mile in Their Genes campaign to raise awareness for PWS and celebrate Rare Disease Day 2023! Where so much of our PWS journey is beyond our control, but we can continue to make our voices and our stories heard through advocacy and community outreach. By joining our "Walk a Mile" advocacy campaign, participants will not only raise awareness about PWS, but they will raise much needed funds that enable PWSA to continue to provide the services our community needs. This virtual/in-person fitness challenge is open to all ages and fitness levels to promote health and wellness while supporting the Prader-Willi community.
We would like everyone to participate in walking a mile on rare disease day, February 28th. Put your jeans on and think of Lyra. I will be posting 15 facts that you can read while you walk, so it is an informative walk.
All funds raised will help to support PWSA | USA's work in Family Support, Advocacy, and Research! The best gift you could give to me is a donation (in any amount) to support the important work of Prader-Willi Syndrome Association USA! Thank you!
