Welcome to Chris and Isla’s “Walk a Mile in Their Genes” fundraising page! In honor of Rare Disease Day, Chris and Isla are raising money to support Prader-Willi Syndrome Association (PWSA|USA) and all that they do for the PWS community. The funds will directly help PWSA|USA in family support, advocacy, and life changing research that will one day, lead to a cure.

PWSA|USA has been an integral part of the lives of Chris and Isla’s families since day one of their PWS journey and we could not be more grateful for all that they have done for us personally and for what they do for the entire PWS community. Chris and Isla have inspired us to take action to ensure that all members of our PWS community continue to benefit from PWSA|USA. 

Chris and Isla have been so lucky to have each other while they walk this path.  We put this fundraiser together to honor our amazing children and all that they endure living with the rare disease PWS. Everyone who donates to Chris and Isla’s fundraiser is invited and welcome to join our families in a fun, one mile walk on February 25th, four days before Rare Disease Day. 

Rare diseases effect an estimated 30 million Americans and we want to help PWSA|USA continue to work to meet the needs of our PWS rare disease community. 

So please consider donating to Chris and Isla’s fundraiser and “Walk a Mile in Their Genes”. Thank you!