About Us / Why Fundraise for PWSA | USA?

From the moment of diagnosis and through the lifespan, PWSA | USA is here to support you every step of the way.

The mission of Prader-Willi Syndrome Association of the United States (PWSA | USA) is to enhance the quality of life of and empower those affected by Prader-Willi syndrome. Formed in 1975 to unite parents, professionals, and caregivers to enhance quality of life of those affected by PWS. We empower the PWS community with HOPE and HELP through Advocacy, Family Support, and Research. PWSA |USA’s sole purpose is to assist individuals with the syndrome, and their families, every step of the way.

Impact that Inspires Your Dollars Raised at Work

Funds raised through Hope United events touch every part of a family’s journey with PWS and direct resources where they are needed most within our three pillars off support. Here are a few ways in which your Hope United event will impact those living with PWS and their families:

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